Genetic Alliance is a non-profit organization that provides high-tech and high-touch programs for individuals, families, and communities to transform health systems by being responsive to the real needs of people in their quest for health. They have a wide range of programs including:
- A database of information on diseases and conditions
- Publications for advocacy leaders, researchers, healthcare providers, and policymakers
- Webinars that showcase expertise and emerging topics
- Advocacy tools for families such as their advocacy atlas and wiki
Good Night Sleep Tight
Using Psalm 4:8 as the guiding mission, the Good Night Sleep Tight ministry provides new twin beds and linens to children who don’t have a bed of their own. Our purpose is to recognize and address the physical need for sleep, which provides a sense of comfort, rest, and peace. Through this coordinated demonstration of God’s love and provision we will bring smiles and comfort to children and families. The program’s focus is to serve families that are part of the local elementary schools. With the help of school officials, we will identify children who need beds and linen kits. Twin bed sets are purchased by the missions committee through a special arrangement with the Mattress Firm Clearance Store at 71st and Riverside in Tulsa.
Got Transition is the federally funded national resource center on health care transition (HCT). Its aim is to improve the transition from pediatric to adult health care through the use of evidence-driven strategies for clinicians and other health care professionals; public health programs; payers and plans; youth and young adults; and parents and caregivers.
Heartland Regional Genetics Network
Heartland Regional Genetics Network is a group of genetics and newborn screening providers, researchers, industry representatives, public officials, and advocates from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota.
Their website provides information and resources to professionals, families, and collaborators to facilitate communication and work within the Network.
Hearts for Hearing
Hearts for Hearing, consists of experienced and acclaimed audiologists who all have one goal—helping you achieve your best hearing. Their approach to patient care is founded on the idea that anything less than the best outcome is unacceptable. Hearts for Hearing will take the time to get to know you, determine your unique needs, and find and fit the best technology to match your lifestyle and your budget.
Infant Crisis Services
Infant Crisis Services provides formula, food, diapers, blankets, clothing, and other basic necessities by appointment. Please call (405) 528-3663 to schedule an appointment. These services are available four times annually to children birth – age 3.
Based on the availability of items, Infant Crisis Services will provide your baby or toddler with:
- One week’s supply of diapers
- Formula for a week or
- Pack of toddler food (depending on age)
- Bottle or sippy cup
- A pack of wipes
- Eligible age: Birth – 3 years.
- Services are provided up to four times each calendar year. Each visit must be at least a week apart.
- We ask that you make an appointment, if possible, before visiting.
View the BabyMobile hours and locations page for more information.
J.D. McCarty Center
J.D. McCarty Center mission is to provide a comprehensive program of rehabilitative care to Oklahoma’s children with developmental disabilities, from birth to age 21.
Kids Joining Eternity
Kids Joining Eternity was formed in Central Oklahoma with the intent to help parents, siblings, family members, friends and caregivers come to terms with the loss of a child whether it be through miscarriage, stillborn loss, sudden infant death, and/or chronic childhood illness.
Kids Joining Eternity hosts a variety of different support groups and events. Visit their Facebook page to stay up to date on current support groups and events.
Miracle Flight provides free commercial airline tickets to those in need of life-changing medical care far from home.
National Alliance of Mental Illness (NAMI) Oklahoma
NAMI Oklahoma has grown to include seven affiliates throughout the state that facilitate support groups, conduct education programs, and speak in the community to increase understanding and bring awareness to mental illness issues and to share the message that treatment can be effective.
The mission of NAMI Oklahoma, in partnership with its affiliates, is to improve the quality of life for individuals and families affected by mental illness through support, education and advocacy.
NAMI Support Groups are peer-led and offer participants an opportunity to share their experiences and gain support from other attendees. They offer Family Support Groups and Connection Recovery Support Groups. Attend one of our local groups in person or virtually for resources, support, and hope.