Past Events

One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community.

To help alleviate these daily burdens and ensure individuals and advocates can navigate local and state-based resources, we will be hosting a State Resource Fair for the rare disease community to coincide with Rare Disease Day. There is no cost to participants to attend this event.

Sibshops are action packed workshops that celebrate the many contributions made by brothers and sisters of kids with special health needs. The workshop includes activities, information, games, and encourages the siblings to connect with one another.

For more information or to register, contact Lora Roberts at (918) 698-6152 or [email protected]

Stretched: Identify your stressors and use your new understanding of the 4 tendencies to build a stress relief plan

Please join us on Tuesday, March 21st at 6:30pm with Lauren Alvarez for the presentation entitled, ” Stretched.” This is about understanding the four tendencies to bring about stress relief. We will identify coping strategies for parents/educators based on how they score on the four tendencies online quiz. The 4 tendencies describe our typical personality motivation factors when it comes to change (inside pressure, external pressure, do my own thing…….). Based on personality tendencies, we will then build a plan for stress management that has a higher chance of success.

For questions, contact Erin Parks at [email protected]

March 23^rd is Developmental Disabilities Awareness Day at the Capitol. This years theme is Disability Counts and it will take place from 9am-12pm.

9-11am: Speakers on the South Steps (speakers include: self-advocates, parents, professionals/providers, and legislators).

11-12pm: we are inviting people to go speak to their legislators at that time. People will be available to help you find your legislator.