Roadmap to Services

 

childcareeducationfinancial-resourcesrecreationlibraryhealthcareparent-family-supportchildhood-cancermilitary

Child Care

Inclusion in Child Care

Respite Care Overview

Reducing SIDS in Childcare Training

Respite Care locator

 Free Respite Care Providers

Bethany First Church of the Nazarene 
6789 NW 39th Expressway / Bethany, OK 73008   (405) 789-2050
Breakaway Program / Respite Care / Free

Hannah’s Promise Respite Care 
Church of the Servant United Methodist Church
14343 N. MacArthur Boulevard / Oklahoma City, OK  73142 (405) 721-4141
Second Saturday of the Month from 5pm – 9pm
Must register the Wednesday before / FREE

Passion Church – Bears Club 
3301 N. Council Road / Bethany, OK 73008  (405) 210-775
Ages 0 – 13 years Respite Care
Spanish Speaking Available

St. Luke’s United Methodist Church
222 NW 15th Street / Oklahoma City, OK 73103 (405) 232-1371
Samuel’s Call 3rd Saturday of the Month, September through May
Sunday School, Respite Care Ages 0 – 14yrs

8140 NW 36th St.
Bethany, OK 73008
405-789-9033
Kings and Queens Special Needs Ministry –By reservation only
Free Respite Care
2nd Friday of each month
6PM-9PM

The Bridge Assembly of God
116 West State Highway 52 / Mustang, OK 73064 (405) 376-453
Respite care FREE 

Project Outreach
Most sessions are held at St. Stephens United Methodist Church –   1801 W. Brooks, Norman, Oklahoma 73069. Sessions will be the one Saturday a month from 1pm-5pm unless otherwise noted.  Please email to verify the dates or to make a reservation.    FREE
projectoutreachnorman@gmail.com or 405-361-0921

Pumpkin Patch Kidz: Pumpkin Patch Kidz serves special-needs children and their siblings ages six months to 12 and is free of charge. The program meets 6-9 p.m. the third Friday of each month at Christ United Methodist Church, 2418 W. Randolph Enid, OK. For information or to volunteer or donate, contact Carissa Rainey at (580) 603-0754 or email ppatchkidz@gmail.com.

Education / Transition to Adulthood

GOT TRANSITION RESOURCES

ODDC Youth Leadership Forum

ZARROW CENTER RESOURCES

Resource_Guide easter seals

Natural Supports Guide

App for requesting a support parent 2012

A Good Life Doesnt Just Happen – worksheet by TX P2p

Transition CN DocsOklahoma Parent Center_info_flyer

Transition goals for significant disabilities 1-29-08

Timeline of Transition Activities

 

Financial Resources

Medicaid fact sheet

Free and Low Cost Clinics

Consumer Credit Counseling Services

Grant for uncovered therapies

OK Resource Guide

Pharmaceutical Assistance

Reduced Rate Phone Service

SSI-SSDI Comparison Brochure FINAL

State_licensed_charitable_pharmacies

TEFRA Checklist-OHCA

Reducing SIDS in Childcare Training

Guide to Community Services OUHSC

Social Security And People With Disabilities: Public Education & Outreach Campaign

Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA)

DHS – Health & Medical Services List

Free and Reduced Cost Dental Care (download pdf)

Scholarships & Grants for Students with Disabilities

Resources & Funding for Independent Living

 

Health Care and Affordable Care Act

Affordable Care Act Information

Healthcare.gov

Oklahoma Health Care Authority – SoonerCare

Oklahoma Health Care Authority – Online Enrollment

TEFRA Checklist-OHCA

Have questions about TEFRA?

TEFRA Forms Link

JDMcCarty

Auditory Processing Disorder in Children

Autism Spectrum Resources

Oklahoma Autism Network

Health Care Reform Information

Tip Sheet for Rising Insurance Costs

Well Child Visit Planning Tool: www.WellVisitPlanner.org

NICU Tips Sheet

Spanish Resources:

HealthFinder.gov en Español!

 

Library

7 Rules for Using ADHD Medications Safely

14 Questions to Ask Your Primary Care Physician. NICU version

ADHD changes with development

ADHD Roadmap

Assis. Tech. for Learning Dis.

Asthma

AsthmaActionPlan

Attention Deficit Disorder Overview

Batten Disease

Bed rest and the Rest

Bereavement Packet

Bereavement Tips

Caring for an infant in NICU

Charge Syndrome Foundation Inc.

Children with ADHD. Diagnosis, Treatment

Compassionate Friends Sibling Bereavement

Deaf and Hard of Hearing Transition Coalition – Dept of Rehabilitation Services

Edmond Family Center For Autism

Edmond Safety Info for CSHCN

Emergency preparedness from Carepages

Emergency Disaster Planning Family Handout

Free Support Group For Parents of Children Diagnosed with Cancer

How I Survive the Holidays by Laura Warren

genetic handbook for families

Kangaroo Care

Learning Disability

Make Promises Happen

Muskogee Hope Center brochure

NE Oklahoma Support Groups

NICU Neighborhood

For Those Who Hold the Littlest Hands – Info & Support for Parents & Babies in NICU

OKABLETechFunding05

Prematurity Tipsheet

Prematurity Resources

Surviving the Holidays Recreational Activities

Texas Dept. of Health Disaster Preparedness

The Dougy Center. holiday help

The Dougy Center

Tulsa Amputee and Orthotic Support

Turner & Sons – affordable, accessible homes

Understanding RSV. Metro Family fall 2008

 

Parent and Family Support

coba
COBA Baby Café
COBA Baby Café at Springlake Campus-Metro Tech
COBA Baby Café-Olivet Baptist Church
 At a Baby Café, a mother can find a relaxed, informal place to:

  • Chat with other moms and build her confidence.
  • Get one-to-one help from specially trained staff.
  • Look at books, leaflets and DVDs.
  • Enjoy refreshments.

Click to read article on Breastfeeding and SoonerCare Benefits

Babywearing Presentation video

Surviving the PICU Video – provided by: Austin Moore and Malley & Henry Fund 

Center for Learning and Leadership Family Perspective Videos

14 Questions For Interviewing A Primary Care Physician

Caregiver Information

Financial Management During a Medical Crisis

Tips for Choosing a Home Health Agency

Tips for Families Experiencing Difficult Medical Situations

Waiting List Information

Respite Voucher Information

Hannah’s Promise – OKC

Email: Wonderfully Made – Norman

OK Healthy Transitions Initiative

OK Federation of Families

OK Systems of Care

FlashPoint Ministry

OKC Area and online – HOPE LINK – for families who have children with rare or undiagnosed conditions

Shawnee – Parent 2 Parent meetings at the First Baptist Church at 10th and Union. This meeting is for parents or caregivers and anyone working with or caring for individuals with special needs. If you have any questions or concerns please contact Holli Harjo at harjo@suddenlink.net.

Tulsa – Extraordinary Connections – contact Lora Roberts at lorar@ofn.mobi

Elk City Area – Oklahoma Parent Advocates for Children with Special Needs

Tulsa – Hispanic Parents Support Group

OKC – Hispanic Support Group OKC – OKMAMAS – contact Erica Herrera at erica-herrera@ouhsc.edu

Guymon – Panhandle Area Support Information Network – contact Monica Ronne at monica-ronne@oklahomafamilynetwork.org

Oklahoma Marriage Initiative – http://www.foreverforreal.com/

Bereavement/Loss Support – www.myveryownangel.org

Kids Joining Eternity – https://www.facebook.com/kidsjoiningeternity
Walking Group / Bible Study / Fellowship

NAMI – Mental Health Support Groups

Autism Support

Edmond Moms of Multiples

Mothers of Super Twins Special Needs Online Support

Grandparent Support

OK Epilepsy Association

The Sibling Support Project – Find one in Oklahoma

Oklahoma Sibshops

http://helphailey.org/

http://www.mommiesofmiracles.com

http://www.thecommonthreads.org

Parents Helping Parents: parent support for youth with substance abuse

Family Support Groups Manual

 

Recreation, Activities & Camps

Activities

DSACO Summer Activities

Grace Arts in OKC

Camps

Camp Cavett

Make Promises Happen

Camp Claphans:

Recreation

Hoofbeats for Hope Therapeutic Riding Center – Norman, OK Area

Coffee Creek Riding Center – Edmond, OK

Sunset Therapeutic Riding Center – Yukon, OK

Tulsa TOPSoccer_School_Flyer

Mandis Ministries Spirit League Baseball

Savannah Station: Therapeutic Riding Program

 

Military

Military Families

Tricare: Tricare offers several programs to assist families with special needs. Extended Healthcare Option (ECHO) offers services, equipment, or supplies beyond those available through Tricare Prime, Extra, or Standard. Echo Home Health Care  (EHHC) is also available.  EHHC provides homebound family members with intensive home health care services.

EFMP:The Exceptional Family Member Program (EFMP) works with military families with special needs to address their unique needs throughout the assignment process and after families have settled into their new installation.

ECHO: The Extended Care Health Option provides financial assistance to beneficiaries with special needs for an integrated set of services and supplies.

EHHC: Echo Home Health Care  benefit provides medically necessary skilled services or respite care to ECHO beneficiaries who are homebound and generally require more than 28 to 35 hours per week of home health services.

STOMP: Specialized Training of  Military Parents STOMP is the only National Parent Training and Information Center for military families providing support and advice to military parents without regard of the type of medical condition their child has.  http://www.stompproject.org/

MilitaryOneSource EFMP Resources: The Exceptional Family Member Program (EFMP) works with military families with special needs to address their unique needs throughout the assignment process and after families have settled into their new installation. Use these resources, tools, and articles to learn more about EFMP and the families it serves.

Operation Homefront: A 501(c)(3) nonprofit organization, Operation Homefront was formed in February 2002. It was developed to support the families of deployed service members immediately following 9/11. Operation Homefront is headquartered in San Antonio, Texas, and has evolved into a major nonprofit. The organization currently provides services to military families across the nation with 23 locations serving 43 states. The national office handles cases in states that do not have their own local offices. The majority of our clients are the lowest-paid service members, the E-1 through E-6 enlisted ranks.

MSNN: Military Special Need NetworkThe Military Special Needs Network is a peer-to-peer, global organization founded to respond to the family support needs of all branches of the military and of our Exceptional Family. We strive to provide family and emotional support and lasting friendships.

USA 4 Military Families Initiative: Is seeking to engage and educate state policymakers, not-for-profit associations, concerned business interests and other state leaders about their military members and their families.

Acadia Healthcare: Military Support Service Program  is specially designed to help our Active Duty Service Members and their families focus on healing from the trauma of living through life-threatening events and human tragedy while courageously performing their military duties to maintain our freedom.  Our highly qualified professionals stand ready to provide first-class mental health care, and unequaled substance abuse recovery and rehabilitation through our network of TRICARE certified facilities.

DOD Office of Special Needs Educational Directory for Children with Special Needs: The Education Directory for Children With Special Needs provides military families with children with special needs the information they need to make informed assignment decisions and easier transitions.

Operation Autism: Directly supports U.S. military families touched by autism and autism spectrum disorders. It serves as an introduction to autism, a guide for the life journey with autism, and a ready reference for available resources, services, and support.

AMFAS: American Military Families Autism Support:American Military Families Autism Support is a grassroots effort started in 2008 by military families, for military families, providing news, information, contacts and options for military families dealing with autism spectrum disorder. Due to the nature of military life and the challenges of autism, these families often experience additional stressors over non-military families.

Algorithms for Navigating Intervention and Funding Systems: The Military Family and Autism. These algorithms are built as flowcharts that help you organize the steps involved in acquiring funding and services as soon as possible. Both algorithms assume that diagnosis have already been made. 

ATMF: Autism Care and Treatment for Military Families: ATMF has helped many military children access effective treatments and quality of life supports which were previously unattainable.

Military K-12 Partners: Impact Aid for Children with Severe Disabilities Program:Reimburses Local Educational Agency (LEA) for money previously spent on military dependent children with severe disabilities. whichwere previously unattainable.

DOD Special Needs Toolkit: contains 110 pages of comprehensive information and tools geared towards helping military families with special needs children navigate the maze of medical and special education services, community support and benefits and entitlements. Each module contains valuable resources and important facts; record keeping tools and sample letters have also been incorporated. The Tool Kit is divided into six colorful modules that can be easily downloaded and printed or saved on to a CD.

The Tool Kit content was developed and reviewed by the military Services Exceptional Family Member Program Managers, TRICARE, DoD Education Activity and Specialized Training of Military Parents (STOMP) Project. However, the most valuable contributions came directly from advocates and military families with special needs children.

Give Parents a Break Program: Military families are subject to unique stresses due to the nature of the  military life- deployments, remote tours of duty, extended working  hours, etc… Families are often separated from spouses as well as from extended family members who might otherwise offer support. Through a  referral system and sponsored by the Air Force Aid Society, child care  is available to eligible families a few hours a month from the stresses  of parenting. 

 To be eligible for the program, families must be referred by one of the following base officials:

  • Squadron Commander / First Sergeant
  • Chaplain
  • Doctor or other medical professional
  • Family Advocacy personnel
  • Airman and Family Services Flight personnel

Families eligible for the program would include those feeling stress due to:

  • Any military member being deployed or TDY
  • Having a child with special needs
  • An emergency situation, such as illness of a family member
  • The family recently moving to the base
  • Unique circumstances or hardships

families-fighting-childhood-cancer
Families Fighting Childhood Cancer Resources (also below)

Awareness

Choose Hope

Jewelry, Key Rings, Buttons, Wristbands, Magnets

CureSearch Walk of Tulsa

A walk benefiting childhood cancer research. Walk day is a fun event for the whole family.

Hope Dreams Designs

Awareness Shirts

Leukemia & Lymphoma Society

888-828-4572

Awareness/ Fundraising Events

People Against Childhood Cancer

Nationwide Awareness

Team Unite

Fighting for Childhood Cancer research

The Truth 365

A movement to raise awareness through social media

Bereavement

Comfort Zone Camp

866-488-5679

Free Camp for Siblings (age 7-17)

Day by Day

Email: gravewords@yahoo.com

Online Support Group that I have been told is very helpful

From Grief to Glory by James Bruce

405-203-8745

Book written by the husband of our OFN director, Joni Bruce (joni-bruce@oklahomafamilynetwork.org)

Tristesse Grief Center

918-587-1200

Grief counseling, individual or group, also has special events

Education

Cure Search Children’s Oncology Group

800-458-6223

Information for parents and patients

Leukemia & Lymphoma Society

888-828-4572

FREE booklets for the child and family

St. Jude Children’s Hospital

901-595-3300

Diagnosis and treatment information

Financial

Ally’s House

405-733-ALLY

Financial assistance

Assistance In Healthcare

918-286-5699

Monthly financial assistance

Catholic Charities

918-949-4673

Food bank, medical clinic, dental clinic, emergency money for things like utilities

Go Bald or Go Home

918-808-6581

Hosts fundraising events for families

Hannah’s Helping Hands

918-697-5683

Financial assistance for local families

Larry Brummett Foundation

Financial assistance

Leukemia & Lymphoma Society

888-828-4572

Offers upto $500/year expense reimbursement

Live Like Bella

786-505-3914

Provides resources for recreation (examples include iPad, gift baskets, movie tickets, etc)

National Children’s Cancer Foundation

800-532-6459

Meals, transportation, lodging, medical

Pierce Phillips Charity

918-851-2545

Financial help including transportation, utilities, hotel, flight, mortgage or other.

Random Acts of Purpose

918-694-4314

Provides a basket of items such as paper towels, toilet paper, toothbrushes, toothpaste, and other items.

United Healthcare

952-992-4459

Grants for medical bills not covered by health insurance

You Caring

A free fundraising website where people can donate to help your family.

Fun Stuff

CaringBridge

Create a network to keep people updated on your child

Cancer Fears Me

Cool Kids Campaign, also offers caregiver support

Cancer Kids

Find other children with same diagnosis

Chemo Angels

Send packages/cards to cancer child and sibs

Emmy’s Heart

918-809-6514

Makes capes and tutus for cancer fighters

Hope Outdoors

501-278-4856

Provides special hunts for kids with illness or disability.

Journeys of Hope

918-406-5543

Photographer, Katie Cariker, provides a free photoshoot to childhood cancer families

Kids Cancer Crusade

Kids listed by diagnosis or location, care packages, resources

Oklahoma Outdoor Outreach

405-692-4567

Special hunts for kids/siblings with special health care needs

Songs of Love

800-960-SONG

Song written specifically for your child

Super Sibs

866-444-SIBS

Sends packages to siblings of cancer child

Webkinz

Online pet to play with in the hospital

Retreats/Camps

Bit by Bit Adventure Horse Camp – Claremore, OK

918-371-1750

Three day camps in summer offer riding for the patient and activities/games for family members.

Camp Cavett – Lake Texoma

405-271-2271

For children a life threatening disease or chronic illness at Lake Texoma

Camp Sunshine – Casco, MA

207-655-3800

Kid and family camps/retreats

Camp Sunshine – Decatur, GA

404-325-7979

Camps & year round programs for kids and parents

Camp Sunshine – Charleston, WV

304-342-5021

Kid and family camps/retreats

Lighthouse Family Retreat – FL

678-290-2955

Christian-based retreat offers families fun & healing

OK Corral – Avant, OK

918-502-6720

For cancer kiddos and sibs, 7-18 yrs old, provided by ACS & St. Francis Clinic Staff

Ski Camp – Winter Par, CO

918-502-6720

For teens with muscle loss or amputation due to cancer

Scholarships

American Cancer Society

918-477-5426

$2500/yr up to 4 years as long as the student meets eligibility requirements

Cancer Survivors Fund

281-437-7142

On or off treatment, financial need, essay to apply

Cancer for College

760-599-5096

On or off treatment

Finaid.org

Lists organizations that offer survivor scholarships

National Children’s Cancer Foundation

800-532-6459

Up to $5000 a year

OK-AHEAD

For children with disabilities such as hearing or physical

Super Sibs

866-444-SIBS

Scholoarships for siblings of kids with cancer

Turn Tulsa Pink

918-691-3874

Scholarships for children’s whose lives have been affected by cancer; personally, parent, or sibling.

The Ulman Cancer Fund

888-393-FUND

Scholarships for young adults who have been affected by cancer personally or a loved one.

Support

Cancer Kids for Christ

770-377-8377

Trains your church how to support you, free t-shirt, prayer support

Leukemia & Lymphoma Society

918-492-0792

Support group for anyone impacted by a blood cancer

Lotsa Helping Hands

Create a community to organize people who want to help

National Children’s Cancer Foundation

800-532-6459

Online Forums

Oklahoma Brain Tumor Foundation

405-843-4673

Tulsa Support Group & Financial Assistance

Families Fighting Childhood Cancer

918-527-5647

St. Francis families uniting to help each other, local events and resources

Tulsa Sib-Shops

Email: lorar@ofn.mobi Facebook: “Tulsa, OK Sibshops”

918-227-1797

Fun activities for siblings of ill or disabled children

Take Them A Meal

Great for friends or family that want to support you by providing meals

Youth Services of Tulsa

918-582-0061

Offers many programs, including counseling

Wish Programs

Hunt of a Lifetime

866-345-4455

Hunting & fishing adventures

Make A Wish

405-286-4000

A “wish” for children with a life threatening disease

Sunshine Foundation

215-396-4770

A “dream” for children with a life threatening disease

Western Wishes

918-640-9444

Wishes for kids faced with adversity and who love the western way of life. Can apply even after MAW.

More…

Pediatric Oncology Resource Center

Many resources compiled by cancer families